{"id":19869,"date":"2021-02-15T11:27:00","date_gmt":"2021-02-15T09:27:00","guid":{"rendered":"https:\/\/rugute.lt\/?p=19869"},"modified":"2021-04-28T21:08:36","modified_gmt":"2021-04-28T18:08:36","slug":"tvsvd-21-povilas","status":"publish","type":"post","link":"https:\/\/rugute.lt\/en\/tvsvd-21-povilas\/","title":{"rendered":"Povilas"},"content":{"rendered":"
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\u00a0Home<\/strong><\/p>

Viskas prasid\u0117jo nuo skausmo \u0161one 2009-\u0173j\u0173 met\u0173 ruden\u012f. Tuo metu \u017eaid\u017eiau rankin\u012f, tad galvojau, kad skausmas \u0161one tiesiog atsirado nuo didelio kr\u016bvio treniruo\u010di\u0173 metu, ta\u010diau skausmas nesiliov\u0117. Po kiek laiko atsirado nedidel\u0117 temperat\u016bra, o v\u0117liau ji pakilo ir nenustojo laikiusis, tad \u0161eimos gydytoja nutar\u0117 paguldyti \u012f ligonin\u0119. Ligonin\u0117je praleidau dvi savaites. Per pirm\u0105j\u0105 savait\u0119 nustojo skaud\u0117ti \u0161on\u0105, o kartu prad\u0117jo kristi ir temperat\u016bra. Kraujo tyrimai atrod\u0117 geri, gydytojai juokaudavo, kad kraujas net kaip arklio, o jie nesupranta, i\u0161 kur ta temperat\u016bra. Paskutin\u0119 buvimo dien\u0105, kai jau i\u0161ra\u0161in\u0117jo i\u0161 ligonin\u0117s, v\u0117l nestipriai prad\u0117jo skaud\u0117ti \u0161on\u0105 ir atsirado \u0161iokia tokia temperat\u016bra. Tuo metu gydytoja \u012ftar\u0117, kad sergu sarkoma, tod\u0117l mums pasi\u016bl\u0117 va\u017eiuoti tolimesniems tyrimams. Atvykus \u012f Vilni\u0173, buvau paguldytas \u012f infekcin\u012f skyri\u0173. Prad\u017eioje temperat\u016bra laik\u0117si, bet buvo nedidel\u0117, tod\u0117l labai didelio nuovargio nejutau. Pras\u010diau pasijutau antroje pus\u0117je, kuomet temperat\u016bra i\u0161likdavo 38o C ir daugiau. Infekciniame skyriuje kraujo tyrimai irgi atrod\u0117 ideal\u016bs, nerod\u0117 joki\u0173 lig\u0173. Galiausiai, po savait\u0117s, buvo paimtas kaul\u0173 \u010diulp\u0173 tyrimas, iki kurio buvau ve\u017eamas ve\u017eim\u0117lyje, nes tuo metu tiesiog nebepaj\u0117giau paeiti d\u0117l auk\u0161tos temperat\u016bros. Kaul\u0173 \u010diulpai parod\u0117, kad 97% kraujo l\u0105steli\u0173 jau buvo blastai ir taip galiausiai su\u017einojau, kad sergu leukemija.<\/p>

\u00a0Gydymas <\/strong><\/p>

\u016amin\u0117 pre-B limfoblastin\u0117 leukemija su Filadelfine chromosoma \u2013 taip skamb\u0117jo mano kelion\u0117s prad\u017eia. Pa\u010dioje prad\u017eioje nelabai kreipiau d\u0117mes\u012f \u012f tai, kuo sergu, sergu tai sergu, reikia gul\u0117ti ligonin\u0117je, tai guliu, o gal per daug d\u0117mesio \u012f tai nekreipiau, nes tuo metu man buvo 12 met\u0173. Tuo metu pati diagnoz\u0117 nek\u0117l\u0117 jokio nerimo, ta\u010diau prisimenu, kad pa\u010dioje prad\u017eioje labai pergyvenau d\u0117l plauk\u0173, kuomet buvo pasakyta, kad jie visi\u0161kai nukris. Pirmasis chemoterapijos kursas nepra\u0117jo taip skland\u017eiai kaip buvo tik\u0117tasi. Po pirmojo kurso ir po beveik dviej\u0173 m\u0117nesi\u0173 buvau i\u0161leistas namo, ta\u010diau jau gruod\u012f v\u0117l tur\u0117jau gr\u012f\u017eti \u012f ligonin\u0119, nes visi kraujo rodikliai v\u0117l prad\u0117jo blog\u0117ti. Taip pirm\u0105sias Kal\u0117das ir Naujuosius metus praleidau ligonin\u0117je. Gr\u012f\u017eus \u012f ligonin\u0119 i\u0161 karto v\u0117l gavau antr\u0105j\u012f chemoterapijos kurs\u0105, kuris suk\u0117l\u0117 vir\u0161kinimo problemas \u2013 prad\u0117jo stoti vir\u0161kinimas. Namo buvau i\u0161leistas tik 2010-\u0173j\u0173 met\u0173 vasar\u012f, kadangi reik\u0117jo tvarkytis ne\u012fgalumo dokumentus. Gr\u012f\u017eus, t\u0105 pat\u012f m\u0117nes\u012f gavau antr\u0105j\u012f chemoterapijos kurs\u0105, kurio nepabaigiau. Nepabaigus antrojo kurso, teko stabdyti gydym\u0105 ir taip baland\u017eio m\u0117nes\u012f atsid\u016briau reanimacijoje, o viso to prie\u017eastis \u2013 sepsinis \u0161okas. Reanimacijoje buvau pirmasis, i\u0161band\u0119s tuo metu nauj\u0105j\u012f deguonies aparat\u0105. Prisimenu tik tiek, kad nuo jo labai i\u0161d\u017ei\u016bdavo burna ir nosis, o ir jo gumel\u0117s, kurios laikydavo kauk\u0119, labai trindavo galv\u0105. Reanimacijoje prabuvau 1-2 savaites, o po jos buvau i\u0161si\u0173stas sanatorij\u0105, kurioje teko mokytis vaik\u0161\u010dioti i\u0161 naujo. Po to, kai prad\u0117jau vaik\u0161\u010dioti, buvo nuspr\u0119sta gydym\u0105 t\u0119sti toliau.<\/p>

Kol gydymas t\u0119s\u0117si, at\u0117jo vasara, o ta vasara buvo ypatingai kar\u0161ta. Galiausiai, rugpj\u016b\u010dio m\u0117nes\u012f, s\u0117d\u0117damas tiesiog nualpau d\u0117l \u017eemo hemoglobino. Prisimenu tik tiek, kad vienu momentu lyg per migl\u0105 valdau kompiuterio pel\u0119, jau\u010diu kaip ranka su ja krenta nuo stalo ir galiausiai vakare atsibundu jau su deguonimi ant veido. Tre\u010di\u0105j\u012f chemoterapijos kurs\u0105 pra\u0117jau nesunkiai, i\u0161 karto po jo prad\u0117jo ir ketvirt\u0105j\u012f, po kurio v\u0117l atsid\u016briau reanimacijoje ir \u0161\u012f kart\u0105 tai buvo d\u0117l sepsinio toksinio \u0161oko, kuris atsirado nuo chemijos. Antroji reanimacija buvo daug sunkesn\u0117 u\u017e pirm\u0105j\u0105, tuo metu sv\u0117riau vos 20 kg, i\u0161 man\u0119s buvo lik\u0119 tik kaulai. Gulint reanimacijoje atsirado didel\u0117 problema \u2013 prad\u0117jo kauptis skys\u010diai. Vienu momentu jau buvau nura\u0161ytas, kadangi t\u0117vams jau liep\u0117 susitaikyti, ta\u010diau tuo metu dirb\u0119s H. \u0160imkus sugalvojo pats i\u0161traukti skys\u010dius, duriant tarp kr\u016btin\u0117s l\u0105stos kaul\u0173, d\u0117l ko jam ir esu labai d\u0117kingas. Po skys\u010di\u0173 i\u0161traukimo viskas prad\u0117jo ger\u0117ti ir galiausiai buvau gr\u0105\u017eintas \u012f \u012fprast\u0105 palat\u0105.<\/p>

Po ketvirtojo chemoterapijos kurso ir gr\u012f\u017eimo i\u0161 reanimacijos, buvo nuspr\u0119sta stabdyti gydym\u0105, kurio tikriausiai buvo lik\u0119 dar du kursai. Kadangi mano gydymui reik\u0117jo kaul\u0173 \u010diulp\u0173 donoro, kuris taip ir neatsirado viso gydymo metu, buvo nuspr\u0119sta gydyti tablet\u0117mis Glivec, kurios buvo skiriamos tik kas tre\u010diam pacientui, kadangi vieno m\u0117nesio table\u010di\u0173 kaina siek\u0117 10 t\u016bkstan\u010di\u0173. Kartu prie vaist\u0173 buvo \u0161vitinama ir galva, kadangi vaistai nepaveikia smegen\u0173. Prad\u0117jus gerti vaistus, viskas prad\u0117jo tvarkytis. Namo gr\u012f\u017edavau vis da\u017eniau ir ilgesniems laiko tarpams, kol galiausiai gydytoja V. Rutkauskait\u0117 pasak\u0117, kad galima nutraukti table\u010di\u0173 g\u0117rim\u0105 ir reik\u0117s atva\u017eiuoti tik pasitikrinti \u012f dienos stacionar\u0105. \u0160iuo metu gerai nepamenu, kuriais metais buvo pasiekta remisija, bet manau jog tai buvo 2011-taisiais metais.<\/p>

\u00a0Gyvenimas dabar<\/strong><\/p>

\u0160iuo metu, pra\u0117jus jau de\u0161imtme\u010diui nuo ligos prad\u017eios, esu Vilniaus Gedimino Technikos universiteto bakalauras. Taip pat dirbu 3D spausdinimo srityje. Nors po ligos buvo sunku u\u017esiimti kokia nors fizine veikla, b\u0117gant metams i\u0161tverm\u0117 ir kitos savyb\u0117s prad\u0117jo ger\u0117ti, k\u016bnas v\u0117l sutvirt\u0117jo, tod\u0117l prad\u0117jau b\u0117gioti, o \u0161iuo metu ruo\u0161iuosi 2021-\u0173j\u0173 met\u0173 ir savo pirmojo maratono b\u0117gimui. Taip pat jau kelerius metus teis\u0117jauju renginyje \u201eMoter\u0173 ralis\u201c. Po ligos esu gan\u0117tinai sveikas ir vis re\u010diau susergu ar per\u0161\u0105lu. Nors ir yra nuo ligos i\u0161likusi\u0173 tam tikr\u0173 komplikacij\u0173, jos man nebetrukdo gyventi \u012fprasto gyvenimo, kadangi neliko nieko kito kaip tik su jomis susitaikyti ir \u017eengti pirmyn. Tuo pa\u010diu nor\u0117\u010diau pad\u0117koti visiems gydytojams, sesel\u0117ms ir kitiems specialistams, kurie prisid\u0117jo prie ligos gydymo.<\/p>

\u00a0Palink\u0117jimas <\/strong><\/p>

Sergantiems vaikams nor\u0117\u010diau palink\u0117ti stipryb\u0117s, tik\u0117jimo, ry\u017eto ir u\u017esispyrimo kovojant su savo ligomis, kadangi \u017eengiant \u012f priek\u012f, pasitikint gydytojais ir kito personalo darbuotojais, visas gydymo etapas praeis daug skland\u017eiau.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"

\u00a0Prad\u017eia Viskas prasid\u0117jo nuo skausmo \u0161one 2009-\u0173j\u0173 met\u0173 ruden\u012f. Tuo metu \u017eaid\u017eiau rankin\u012f, tad galvojau, kad skausmas \u0161one tiesiog atsirado nuo didelio kr\u016bvio treniruo\u010di\u0173 metu, ta\u010diau skausmas nesiliov\u0117. Po kiek laiko atsirado nedidel\u0117 temperat\u016bra, o v\u0117liau ji pakilo ir nenustojo laikiusis, tad \u0161eimos gydytoja nutar\u0117 paguldyti \u012f ligonin\u0119. Ligonin\u0117je praleidau dvi savaites. Per pirm\u0105j\u0105 savait\u0119 […]<\/p>\n","protected":false},"author":1,"featured_media":19778,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[363],"tags":[],"ppma_author":[249],"class_list":["post-19869","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-vaikysteje-diagnoze-onkologine-liga"],"yoast_head":"\nVaikyst\u0117je Jie i\u0161girdo diagnoz\u0119 - onkologin\u0117 liga Povilas<\/title>\n<meta name=\"description\" content=\"Vaikyst\u0117je Jie i\u0161girdo diagnoz\u0119 - onkologin\u0117 liga Povilas\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rugute.lt\/en\/tvsvd-21-povilas\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Vaikyst\u0117je Jie i\u0161girdo diagnoz\u0119 - 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